2.25.2009

They Must Be Twins or Something...


Ok, one more thing. I had to add this picture we got today of Jack and Brooklyn because it is the first time we have been able to hold them next to each other. We discovered something when we did - they look exactly alike!! Ryan has a strong resemblance to them both as well. We think Britton and Lila probably look a lot like each other, but it's too early to tell. Anyway, just wanted to share.


God Bless,
Ethan

Five at a Time...Priceless!!!!


We got a very cool surprise today in the NICU today as Casey was holding Britton and I was holding Jack. I'm not even sure what started it, but one minute we're just sitting there chatting with the nurses and the next thing you know, we've got nurses bringing us the other three babies for a quick photo op!! It was really cool to have them all side by side and the pictures we got are absolutely PRICELESS!!!! The babies are in birth order in the picture from left to right - Brooklyn, Britton, Jack, Lila, and Ryan.
To be honest, I got a little nervous doing this because it meant that Brooklyn, Lila, and Ryan were disconnected from all of their monitors to make this happen, but we were surrounded by nurses and we only got to do this for a few quick minutes. Don't let my nerves fool you however, the babies all continue to do very, very well. They each still have their own little issues that they need to overcome before they are allowed to come home. Brooklyn needs to get better at eating, Britton needs to grow, Jack needs to stop having heart rate drops, Lila had a pretty big setback today, and Ryan just needs to eat, eat, eat!
Lila's setback was a really scary episode that quickly reminds us how important it is for the babies to be so closely monitored. For some reason she had a major heart rate drop coupled with a prolonged episode of very low oxygen saturation that required her nurse to artificially breathe for her for about four minutes. She never completely stopped breathing, but her oxygen saturation was too low to allow her to work through the problem on her own. This was out of character for her, but apparently isn't an uncommon event for preemies to experience. She's ok, but this little episode means that she will be in the NICU for a minimum of seven more days, probably longer.
One other quick note - Jack had his circumcision performed this evening. Casey's ob/gyn, Dr. Stephanie Reich performed the operation and reported that all went well and Jack did not make a peep. Atta boy, Jack!
It is possible that one or two of the babies will be coming home in the next 7-10 days, but it's really unclear at the moment. They are all doing very well, but these lingering issues with eating and breathing have to go away entirely and stay away for a good seven days or so before they can think about sending them home with us. Please continue to pray for their growth and maturity with eating and breathing!!!
God Bless,
Ethan
P.S. Eliot is really into calendars and loves keeping track of the passing days on the calendar in her room. She gives us daily updates of lunar events ("Daddy, it's a full moon tonight!"), holidays, and other notes listed on the calendar. I only mention this because she just ran out of her room to inform us some important news - tomorrow is Flag Day in Mexico...very exciting stuff!!

2.24.2009

P.S. Thank You!

I wanted to thank everyone for the feedback on my "God Did This" blog. The comments on the site as well as the emails and other comments I have received were very encouraging, not only to our positive spirit and outlook on the future, but also on the power of faith in people's lives. Thank you all - your comments are a great source of inspiration!!

God Bless,
Ethan
www.JonesLife.net

Eliot's "Slipper Party" and a Night Out With My Lady











My birthday was last Saturday and we just put the wraps on one of the best birthday weekends I've ever had! It started out on Friday night with Eliot's "Slipper Party" which was a slumber party that we threw for her to celebrate her big sister status. Somehow, "slumber" got translated into 4-year-old speak as "slipper" - it was actually a pretty cute and fitting name so we let it stick.

We had multiple motives for throwing the party. The first was to thank all of the families who helped out so much with Eliot's care while Casey was pregnant and I was going crazy trying to juggle everything. The second motive was to reward Eliot for being so easy-going with all of the schedule changes and uncertainty that each day brought her as we shuffled her from house to house in order to give Casey the rest she needed and me the time I needed to keep my head in the game. We figured a night off for all of the parents and a night of giggles, movies, cookies, and cream would just about do the trick!!

Eliot had five little girls come over for the evening with four of them staying the night. We got them off to a quick start with a pizza party followed up by freshly baked cookies, ice cream sundaes, and a movie on the big screen! After they were good and sugared up, I worked as much energy out of them with lots of wrestling on the couch, games of tag and hide-n-seek, and lots and lots and LOTS of giggles...it was GREAT FUN!!! When it was time to settle down for the night, we put them all in sleeping bags in the gameroom and left them alone with Cinderella for the remainder of the evening. Believe it or not, the girls actually got some sleep, though probably not as much as they are used to on a normal night.

In the morning, the girls got in a good round of cartoons, Lucky Charms, and playing house before their parents came to get their tired little angels. There was no rest for the weary Joneses, however, as we had to run out the door to get Eliot to a princess party thrown for one of her friends' birthdays. She had a blast, of course, dressing up like a princess and playing with all of the other little girls!

After a trip to the NICU and a little bit of rest time, Casey and I got to go out on our first real date in who knows how long. Casey's mom and brother came to town (Uncle Kyle's first visit to see the babies!) and they entertained Eliot for the night while Casey and I did some shopping and fine dining at The Domain in Austin. What a night we had! Good wine, good food, and good conversation about what was, what is, and what's to come in this oh so boring life of ours!!! This was without a doubt one of my best birthday's ever!

God Bless,
Ethan

2.19.2009

God Did This

The stress got to me today. It hasn’t happened very often and it usually doesn’t last long when it does, but when it comes, it comes like a flood – abrupt, painful, and pervasive to every aspect of my life. Today it was more like a tsunami. While these episodes have yet to be crippling, the suddenness with which they come and the relatively minor events that seem to trigger them always leaves me wondering if I’m falling back into some old habits, my old ways of “dealing” with stressful events in my life. It frightens me to think that maybe I’m not ready for all of this, that maybe I’ve tricked myself and others into believing that it’s all going to work out just fine. What if my faith isn’t strong enough to carry me through? What if the reason that we’ve been able to enjoy this adventure up to this point is simply that we haven’t yet been hit with the fatal wave of circumstances that is certain to wipe us out? What if we can’t possibly handle what’s coming our way? What if our marriage suffers? What if Eliot is overshadowed, over-stressed, and overwhelmed? What if my career, my company doesn’t succeed? What if, what if, what if…

Stress and, more specifically, recognizing the stress in my life has been an issue for me for as long as I can remember. I’ve always been pretty good about sucking it up, dealing with it, ignoring the pain…fill in whatever other cliché you can think of here. Problem is I never dealt with the stress; I just got really good at not allowing myself to feel it; essentially I was ignoring it. Sounds great, right? Never feel stress again…who wouldn’t want that? Unfortunately however, I learned the hard way that you cannot confine this talent to just the stress in your life. At least I wasn’t able to; maybe others can, but I couldn’t and didn’t. I also learned the hard way that ignoring the stress is not the same as dealing with it and just as the rubber on your tires only has so many miles it can handle so also does the tread on your soul. The miles add up, the tread breaks down, the soul falls apart…

While I was busy ignoring the stress in my life, I was also ignoring the wounds that were being inflicted by stressful events in my life. To make matters worse, my ignorance of my own stress level allowed these wounds to grow instead of heal. The hurt, anger, bitterness, and frustration from these events was building up inside of me and never found release. Possibly worse than that or at the very least equally unhealthy is the fact that I was also ignoring the needs of those around me - close friends, family, and strangers alike. Without even realizing it, I was shutting people out of my life, including those closest to me, and I slowly became aware that I was living alone, inside the very constricted, cold walls that I had built up over the years. Walls that were initially intended to protect me were now walls that confined me. My growth as a person, as a member of the community God created, had become like that of a fish, restricted to the size of the container that bound me.

Well, as you might imagine, you can’t go on living life this way until something eventually gives. And give it did…big time! I’ll spare you the details, but know that thanks only to the Lord above, the effects of a life lived this way, though certainly life altering was not life destroying. And the damage that was done, with help from good friends and good people in my life, was quickly undone and I was soon well down the path of reclamation and restoration of a soul that had lost its way.

I learned a few lessons along the way - I learned a little about life and I learned a little bit more about the God who made this life possible. Now that I look back on the course of events of my life, I know that I was never alone in all of this. Though I never asked for it, never would have admitted it, and oftentimes was never even aware of it, I had a lot of help in keeping it all together when it very easily could have all fallen apart. There was a hand at work, busy filling the cracks and holes in my life that had begun to accumulate as a result of my choices and the bumpy, dark, and dusty roads I decided to travel. Back then, I never stopped to reflect on my life, I just kept moving, onward and upward…or so I thought. I never stopped to give thanks and I never stopped to consider just how blessed I was.

These days I do look back - almost daily - and I do give thanks after carefully considering just how blessed I am. I consider how fortunate I am to have the wife that I have and I consider all of the ways that she was designed perfectly just for me. I also consider how amazing my daughter is and how her attitude and happy-go-lucky-ready-for-anything nature will be just right for the challenges that lie ahead. I consider how truly incredible my parents are as are many of the other folks they brought into my life who have all contributed to the person I am today. I consider how amazing it is that the people who have selflessly and tirelessly carried us, cared for us, and loved us from the day the Quint Invasion began entered our lives only 18 months prior.

When the tidal wave of emotion and stress comes over me and sends me reeling into a backwash of doubt and anguish, these are the things that I consider. And after careful consideration, there is only one conclusion that I believe any man who has his wits about him and has in place a rational view of his role in this world can come to: God did this. God chose to knit me together in my mother’s womb, to place me in my parents’ care, to bring me together with my amazing wife, to bring Eliot into our little world, to bring us to Riverbend Church and the Marriage Builders group. He chose to smooth out the rough patches of our lives, to challenge me, shape me, mold me, and to love me too much to leave me the way I was and am today. And he chose to breathe life into those five little babies that now breathe life into ours.

So this is how I make it through and this is how I know I’m not falling back into those old, dangerous habits. When the stress strikes, the world begins to tighten its noose, and the air suddenly gets really thin, this is the place I always return: God did this; there is no doubt in my mind. God did this and he will see us through. How he’ll do it, how he’ll answer the what if’s that seem to come up every day, no one can say. To be honest, I don’t know much of anything beyond how I’ll handle today. And, strangely, I’m comforted by that. It takes some getting used to, but yes, I’m comforted by the fact that I have little clue as to what road I’ll be traveling when I wake up tomorrow morning. I’m comforted because I believe that this is exactly where he wants me - living one day at a time, living a life completely dependent on him. God did this just as he has always done this, with or without my permission. God did this and he will continue to do this. God did this, and with his continued guidance and direction on my life, we’ll continue to be able to do this…somehow, some way…one baby step at a time…

God Bless,
Ethan
www.JonesLife.net

2.17.2009

No Wimpy White Boys!!





As we've come to find out, white males typically do not perform very well in the NICU. They don't eat well, they don't grow very well and are generally outperformed by their female counterparts. White males have apparently done so poorly in their NICU stays that they have earned themselves a nickname - Wimpy White Boys. Well, I am proud to say that my boy, Jack William, is an exception to the rule! Not only is he doing well, he is outperforming all four of the girls. He is the first four pounder, weighing in at 4 pounds, 2.5 ounces, he is the first one to be moved out of an isolette and into a regular crib, and if he keeps it up, he is likely to be the first one we get to bring home! Go Jack!!

Though she is nowhere near as well off as Jack, Brooklyn is doing the best of all the girls. Ok, I may have exaggerated just a bit with that statement. Truth be told, Brooklyn is a close second to Jack's supremacy. She was moved out of her isolette today and will stay in a crib if she can do well with the change. She weighs in now at 3 pounds, 12.6 ounces.

Britton continues to be the baby of the bunch weighing in at only 2 pounds 12.3 ounces. The doctors are a little concerned that she hasn't been gaining much weight so they are increasing her calories and monitoring her red blood cell and platelet count. It probably doesn't help her weight gain that she is still the diva of the bunch. She spends much more time than the rest letting the nurses know about every little discomfort she experiences, of which there are many! I do not believe it will be necessary, but if she does not start picking up the pace, they are considering doing a blood transfusion to get her red blood cell count to pick up. Other than that, she is doing very well in all categories. Please pray for her to respond to the increase in calories and to begin growing faster! A bit of good news on Britton is that she is no longer on any oxygen support which means one less cord strapped to her face...yeah!

We have wonderful news on Lila's and Ryan's hearts - they double checked the PDA's that they had with great results! Lila's PDA was completely gone and Ryan's was classified as "trivial." Thank you to all who prayed for their little hearts to be healed!!! Both are growing well - Lila weighs 3 pounds, 2.4 ounces and Ryan weighs 3 pounds, 8.2 ounces. Lila has been removed from oxygen support, but Ryan will be on it for a few more days at least.

Four of the babies can now be held by grandparents as they can now maintain a good body temperature while bundled outside of their isolettes. Britton still can only be held skin-to-skin by me or Casey. Eliot has now held Jack and Britton while Grandma Stevie has held Ryan, Jack, and Brooklyn (that is Jack that Eliot is holding and Ryan that Grandma Stevie is holding in the pictures). All of the babies had a second cerebral ultrasound to check for problems with their brains and they found no issues whatsoever!! They will all undergo an MRI before they go home as one last check for any complications that may lead to long term developmental problems.

As of yesterday, the babies are one month old and continue to impress all of the doctors and nurses in the NICU. We expect that Jack will come home in the next 2-3 weeks and the rest will be home shortly after that. Then the real fun will begin!

God Bless,
Ethan
http://www.joneslife.net/

Oh, one more thing. Someone asked why Eliot was allowed to go into the NICU. Seton allows siblings of any age to go into the NICU once they have been checked by the nurses to be certain they do not have any sniffling, coughs, etc. We are so grateful that Eliot has been able to experience the NICU with us!!

2.16.2009

New Slide Show on JonesLife.net

Check out the new slide show that Tracey Taylor, owner of Taylor Made Portrait Studio, did for us after a visit to the NICU. The link is on the front page of the website directly beneath the small slideshow that is posted there. We were actually a little reluctant to have Tracey come up to photograph the babies as we didn't think she would get much given the environment of the NICU. Boy, were we ever wrong!! She did an amazing job of capturing the essence of our experience with our babies, a talent Tracey has shown all along as she has chronicled this adventure!

Also, we were interviewed today by KVUE who wanted to update Austin on the baby's one month birthday. They ran the report on the six o'clock news. We'll have the link up on the website in the next couple of days.

God Bless,
Ethan
www.JonesLife.net

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